Seizure episode — tonic-clonic, 2 min
March 4. No ER visit. Rescue diazepam administered. Dr. Patel notified same day.
Health history
2024
Seizure
2022
Seizure
Seizure cluster — 3 events over 6 weeks
Feb–Mar. Levetiracetam dosage adjusted upward following cluster. EEG ordered.
2019
PURA
PURA syndrome — formal documentation added
Genetic confirmation on file. Neurology notes updated. SC DDSN notified.
2019
Seizure
Febrile seizures — 3 episodes Jan–Mar
Believed fever-triggered. Neurologist initiated new monitoring protocol.
2016
Diagnosis
First documented seizure activity
Initial diagnosis confirmed. Neurologist Dr. Harmon began monitoring. Parents trained on rescue protocol.
2006
Surgery
Spinal surgery — L4/L5 corrective procedure
8-day hospital stay. PT follow-up for 6 months. Full anesthesia notes on file. No complications.
Medications
Levetiracetam (Keppra)
750mg twice daily · Anti-seizure · Monitor for mood changes
Diazepam — rescue protocol
10mg rectal gel · Administer if seizure >5 min · Blue bag, kitchen cabinet · Check expiration quarterly
Melatonin
3mg · 30 min before bedtime · Sleep onset support
Multivitamin
Children's chewable · With breakfast · No known interactions
Care team
Neurologist
Dr. Priya Patel
MUSC · (843) 555-0192
Primary care
Dr. James Harmon
Charleston Family Med · (843) 555-0144
Occupational therapy
Sara Whitfield
Tuesdays 10am · (843) 555-0177
Speech therapy
Beth Nguyen
Thursdays 2pm · (843) 555-0163
Behavioral support
Marcus Webb
Monthly · (843) 555-0188
SC DDSN caseworker
Linda Torres
File #44821 · (803) 555-0120
Routines & videos
8:00 AM · Daily
Video guide
Shower & shave routine
Jordy needs a consistent order and verbal cues at each step. He does best when the caregiver waits at the door — not inside the bathroom — and checks in every 2–3 minutes.
Jordy's shower & shave
Recorded by Mom · Apr 2025 · 4:32
Step-by-step
1Say "Jordy, shower time" — give him 2 minutes to finish what he's doing
2Towel, clean clothes, and razor already laid out on counter before he enters
3Water set to medium warmth — he regulates poorly and won't tell you if it's too hot
4Shave after shower, not before — he's calmer when warm. Use Gillette Fusion only
5Check in at door: "Good job, almost done?" — he responds well to encouragement
!If he refuses: Don't force. Offer choice: "shower now or in 10 minutes?" He almost always picks 10 min and follows through
7:00 AM · Daily
Video guide
Morning routine
Wake, wash face, dressed in order: socks always first. Breakfast by 7:30. No loud TV before 8am.
Jordy's morning routine
Recorded by Dad · Jan 2025 · 3:18
1:00 PM · Daily
Video guide
Nap routine
Weighted blanket required. Dark room, white noise on. Do not wake before 30 minutes have passed.
Jordy's nap routine
Recorded by Mom · Feb 2025 · 2:05
8:30 PM · Daily
Video guide
Bedtime routine
Bath, pajamas, 2 books his choice, melatonin. Lights out by 9pm. Room temp 68–70°F strictly.
Jordy's bedtime routine
Recorded by Mom · Mar 2025 · 5:47
Document library
Supabase
Drop a file or click to upload
PDF · Images · Text · Saved permanently to Supabase once connected
Neurology visit notes — Dr. Patel — March 2024.pdf
Medical
Medicaid renewal notice — June 2026.pdf
Insurance
EEG report — Feb 2022.pdf
Medical
Special Needs Trust — executed 2021.pdf
Legal
SSI award letter — 2023.pdf
Insurance
Jordy at Christmas 2023.jpg
Personal
Will & estate
Special Needs Trust — executed 2021
Guardianship order — renewed 2023
Letter of intent — last updated April 2026
ABLE account — opened 2022